About the Study: This study is being conducted by researchers at the School of Public Health, Virginia Commonwealth University. This study investigates the relationship between alcohol and nicotine use and health-related quality of life, as well as social drivers of health, among adolescents and young adult cancer survivors (AYACS). The study also examines screening, diagnosis, treatment, and management of alcohol and nicotine use within oncology care settings.

Eligibility: You may be eligible for this study if you:

• Are currently between 21 and 39 years old.

• Were diagnosed with Breast Cancer, Testicular Cancer, Thyroid Cancer, Lung Cancer, Melanoma, Lymphoma or Leukemia

• Have completed active cancer treatment.

• Either do not currently use alcohol or nicotine, use only alcohol, use only nicotine, or both in the past 30 days.

• Are able to complete an online survey in English.

Participation Requirements: Participation will primarily involve completing an online survey which will last for approx. 1 hour. Some participants may also be invited to participate in a semi-structured interview which will last for approx. 1 hour.

Compensation: Participants will receive a $20 gift card for completing the online survey. Participants who are invited for a semi-structured interview will receive and additional $20 gift card for their participation.

Primary Investigator: Dr. Alexander Lucas, School of Public Health, Virginia Commonwealth University

Participation Contact: To participate in this study, or for more information, please contact the study team via email: Tolulope.Kolawole@vcuhealth.org

About the Study:
This study is being conducted in partnership with a group at Indiana University Research Jam at Indiana University and focuses on perspectives on deciding which treatment plan is best after being diagnosed with non-seminoma stage I testicular cancer (no evidence of cancer spread to lymph nodes). As part of the study, participants will take part in a three-hour virtual focus group facilitated by Research Jam.

Eligibility Requirements:
Individuals diagnosed with non-seminoma stage I testicular cancer (with no evidence of cancer spread to lymph nodes) may be eligible to participate.

To participate, you will be asked to:

• Take part in a three-hour virtual focus group.

• Participate in activities such as Journey Mapping, a loosely guided discussion, collage, and image ranking.

Compensation:
Participants will receive a $150 Visa gift card for taking part in the focus group.

If interested, please click the link below to learn more about the study and to sign up.

https://redcap.link/ncfpn0db

You can also reach out to their team directly by calling/texting Lisa at 463-245-7572 or emailing jams@iu.edu.

About the Study:
This study aims to understand the specific unmet needs and requirements of testicular cancer patients during follow-up care in both face-to-face and remote models of care (UK only). During the study, participants will take part in a one-off interview to discuss their experiences during follow-up and what they see as most valuable during this stage of care. These discussions will help determine how to best identify participants’ needs during follow-up. The study will also explore potential solutions for the type of support individuals expect when voicing a need.

Eligibility Requirements:
Testicular cancer patients in the United Kingdom who have experience with follow-up care may be eligible to participate.

To participate, you will be asked to:

• Take part in a one-time interview about experiences with follow-up care and perspectives on what support is most valuable during this stage.

To find out more click here or email Gwen at gwendolyn.saalmink@nhs.net

REGISTRATION DEADLINE IS SEPTEMBER 10, 2025

About the Study: The Indiana University (IU) School of Medicine and IU Simon Comprehensive Cancer Center are recruiting 50 testicular cancer survivors for a new supportive care study. The PERSIST study is evaluating two newly developed programs designed to address some of the most common and disruptive unmet needs among testicular cancer survivors, including fear of recurrence.

What makes PERSIST unique is that both programs were co-designed by seven testicular cancer survivors, ensuring the content is directly relevant to survivor experiences. Participants can join sessions virtually from home via Zoom and may receive up to $350 in gift cards for their participation.

Eligibility requirements: Eligible participants are survivors aged 18–40 who have completed cancer treatment within the past five years and who experience at least moderate anxiety or fear of recurrence.

Participation includes three study surveys over five months and six weekly 90-minute group sessions with other testicular cancer survivors. Sessions will be held on Wednesday or Thursday evenings from 6:00–7:30 p.m. Eastern Time, beginning in early October.

Additional details are available on the attached flyer, including a QR code linking to a brief message from five of the survivors who helped co-design the programs.

For more information or to potentially enroll in the PERSIST Study, please email the study team at care4u@iu.edu or call (317) 274-9205 right away. Enrollment closes soon!

Thank you for considering this invitation to participate in the PERSIST Study!

About the Study: This study explores how relationship status at the time of diagnosis influences counterfactual thinking (i.e., thoughts about "what could have been") and psychological distress among testicular cancer (TC) survivors.

Interviews will be conducted online via Microsoft Teams and will last approximately 60 minutes. Participant privacy and confidentiality are central to the study. All data collected will be securely stored and pseudonymized to ensure that no identifying information is linked to responses. The research has undergone an ethical review process to safeguard participant rights and well-being.

The aim of this study is to improve support strategies for TC survivors by identifying key psychological factors that shape their experiences after diagnosis. By participating, survivors can contribute to the development of tailored interventions that address their unique needs, regardless of whether they are single or partnered.

Eligibility Requirements: To better understand these experiences, the researcher is conducting confidential, semi-structured interviews with male TC survivors who meet the following criteria:

• Male survivor of testicular cancer

• Diagnosed within the last 15 years

For more details on how to join the study please see here or contact Jackson Holloway at j.holloway@student.maastrichtuniversity.nl

About the Study: This study was designed to adapt and test a type of counseling called Goal-focused Emotion-regulation Therapy (GET). The research team is interested in how young men navigate life goals and manage their emotions after testicular cancer. They would also like to learn more about biological factors—like stress hormones—that may affect one’s emotional and physical health. This study will help them better understand quality of life needs and further develop the GET program, in the hopes of providing this service to more young cancer survivors.

Eligibility Requirements: All young adult men diagnosed with testicular cancer who have completed their primary treatment in the past two years may be eligible to participate.

To participate, you will be asked to:

• Collect saliva samples at home and complete online questionnaires before and after the study.

• Attend 6 online counseling sessions provided by a trained interventionist.

Compensation: Participants receive $50 for each of the four assessments (before the study, directly after the study, 3 months after the study, and 6 months after the study) for a total of up to $200.

For more details on how to join the study please see here.

The goal of this study is to get at least 10 young adult survivors to sign up from every organization that supports Adolescent Young Adults (AYAs) in the country.

Here’s a little bit about the study:

Consented participants will:

• Complete questionnaires before starting, and at 3 and 6 months.

• Wear an activity monitor 24/7 for 7 days before starting and at 3 and 6 months.

• Receive a Fitbit, the Opt2Move app, exercise prescription, and 15-min orientation call

• Be compensated up to $150 for participating + they get to keep their Fitbit watch!

Who can participate?

Eligible participants are 18-39 years old now and at cancer diagnosis, have completed primary treatment, are within 5 years of diagnosis, have internet access and own a smartphone.

To get started, follow this online screening link. Here is a 1-Minute Recruitment Video.

The insights gathered from this survey are crucial in shaping the advocacy and support efforts by the NCCS. By understanding the experiences and needs of cancer survivors and their caregivers, NCCS can better inform its programs and policies to make a meaningful impact.

• Eligibility: Cancer survivors and caregivers

• Languages: Available in English and Spanish

• Confidentiality: Responses are strictly confidential and will be analyzed collectively.

To participate in this study, click here.

The goal of this study is to improve support for testicular cancer patients by understanding better the patient perspective of the medical process after orchiectomy (removal of the testicle) in patients who have stage I disease (no spread to lymph nodes).

Participation in this study will involve:

• An online questionnaire, which is estimated to take 3-5 minutes to complete.

To learn more or to participate in the study, click here.

The purpose of this research study is to find out more about life after cancer, specifically to understand the impact of cancer sexual well-being components, including sexual health knowledge, interpersonal relationships, and body image among young adult survivors, ages 18-25 years old.

Participation in this study will involve:

• An online questionnaire, which is estimated to take 60-70 minutes to complete.

• Compensation of $15 total in the form of an Amazon Gift Card following completion of the online survey.

To learn more or to participate in the study, click here.

Are you a cancer survivor aged 18 to 39 who has completed treatment and has concerns about relationships or sexual health? Researchers at Dana-Farber Cancer Institute are conducting a research study to learn directly from young adults about these concerns. If you are interested, please email survivorship_research@dfci.harvard.edu

Click here to view full study.

Are you a young adult cancer survivor and having trouble falling or staying asleep?

STEP-YA is an online educational program intended for survivors ages 20-39 with insomnia. 

STEP-YA includes a single, 1-on-1 education session about changes for sleep habits and health behaviors to improve sleep. After which you will complete two brief online surveys within a two-month period and be compensated up to $60 for your time. Some participants may receive two brief coaching sessions in addition to the education session. Check out our 90 second video and learn more at: www.stepforsleep.com!