At the Testicular Cancer Summit, we will have not one but two amazing testicular cancer doctors on hand to answer your questions in two hour-long "Ask the Oncologists Anything Q&A" breakout sessions, Dr Phil Pierorazio of Johns Hopkins Medicine, and Dr Clint Cary of Indiana University! You've already been introduced to Dr Pierorazio, but here's a bit about Dr Clint Cary!Read More
Our blog where we cover many topics about testicular cancer.
After being diagnosed with stage 3 Testicular Cancer that spread to my lymph nodes (because I put off going to the doctor), I got inspired. Two years ago, I created a campaign that received worldwide attention - I pushed a giant inflatable testicle across 2 countries and over 8,000 miles to raise awareness for this cancer. Yes, you heard that right, a giant NUT!Read More
Steve Fillmore was diagnosed with his first cancer at age 41. The first cancer was a life disruptor at first but taken care of with an orchidectomy. Then one year later the cancer had come back in a different location in his body. With the cancer coming back a second time, Steve needed to do several rounds of chemo. While going through chemo, Steve began his journey in using whole food nutrition and mindset to heal the body.Read More
The Testicular Cancer Summit is pleased to have Emily Cox-Martin, PhD as a panelist! "I am a Clinical Psychologist and Assistant Professor in the Division of Medical Oncology at the University of Colorado School of Medicine. Working in the field of Psycho-Oncology, I help patients improve coping and adjustment around their diagnosis. I focus on the difficulties that emerge at the intersection of cancer and mental health across the cancer continuum, from diagnosis into survivorship.Read More
This is the incredible story of Toni Brown and her son, Alexander, and his year long fight against testicular cancer starting in January 2014. Alex was a student in his final year of Geology at the University of British Columbia (UBC) in Vancouver, Canada, when he collapsed in one of his classes after having strange flu-like symptoms for a few days, only for it to be realized that he actually had advanced stage testicular cancer! What's a mother to do other than drop everything at their home near Ottawa at the opposite end of the country, and race to her son's side? "I packed for two weeks and left home the following day. Little did I know that I’d be gone for 346 days."Read More
On Saturday, August 5th, the Testicular Cancer Awareness Foundation was at Rugged Maniac in Mohnton, Pennsylvania for the day to raise awareness about Testicular Cancer. Jason Greenspan from the TCAF East Crew attended this event. Rugged Maniac is a 5K obstacle course which travels to different cities across the country.Read More
My last post was all about how talking about cancer can be awkward for those who aren’t experiencing it personally, but talking about testicular health as a survivor can be just as hard. I've also shared about some excuses guys may use to avoid doing a self-exam regularly. The topic of testicles can be considered impolite, even if it’s coming from a place of education. One of the primary goals of ABSOT is to get these “private” conversations out in the open, but that’s easier said than done. So to help, a la Barney Stinson’s Playbook from How I Met Your Mother, I’ve crafted various ways to bring up self-checks and testicles into everyday dialogue, based on some real life experiences.Read More
I was a prisoner of my past. My prison warden was someone called “I used to”. “I used to” would remind me of my previous accomplishments lifting humongous weights, running long distances, and various feats of acrobatics. The warden was quick to steal the joy out of my life and pull the rug out from under me whenever I attempted to regain the strength I was so proud of having before. I spent many days feeling sorry for myself and lamenting the things I could no longer do until one day I decided I was done with the suffering.Read More
We all went through different experiences on our paths to being survivors. But we are all linked through one common thought. The memory remains.Read More
42 years ago today I heard those fateful words... "it's cancer"... I went on to also hear my doctor tell me he knew of ONE patient with my pathology that LIVED... I was told I had a less than 10% chance of survival... and yet here I am over 4 decades later!! In a couple months we will travel to Denver to participate in the first ever Testicular Cancer Summit and will finally get to meet many of our brother and sister survivors!Read More
I am an urologist at Johns Hopkins in Baltimore, Maryland and a passionate advocate for our testicular cancer patients. I am a member of the National Comprehensive Cancer Network Guidelines Committee for Testicular Cancer and considered among the experts in robotic and open retroperitoneal lymph node dissection. There is no cancer like testicular cancer, it affects young men and because of the high cure rate, can have lasting effects for decades after successful treatment. For those reasons and more, there is no patient population like testicular cancer survivors – and there is no more rewarding group for whom to care.Read More
Jason is looking forward to the Testicular Cancer Summit because it is a great way for all members of the Testicular Cancer community to come together and interact. He will be able to share his story with others, but also learn from other Testicular Cancer survivors as well! There will be survivors from all over the world and many Testicular Cancer foundations, as well as world renowned doctors who specialize in the treatment of Testicular Cancer. With all these elements and this being the first event of its kind anywhere in the world, the event is sure to be a major success! Jason will be speaking about his cancer journey as a student in high school and the impact it had on his life. He will also be discussing what young men can do to be more active about Testicular Cancer awareness in their own communities.Read More
The Jaimeson Jones Memorial Scholarship has two missions: Providing scholarships to families who have experienced childhood cancer, and preaching early detection of TC by teaching its signs and symptoms. JJMS is dedicated to changing the culture of silence about men’s health and heightening people’s awareness about testicular cancer, and to do that, we get them where they live: with humor. We are beyond honored and thrilled to be attending the first-ever Testicular Cancer Summit.Read More
I'm a fighter, and a survivor, just like all of you. I've become a recognized writer on the topic of young adult cancer, with blogs that have reached hundred of thousands if not millions across the world on multiple platforms. By pure chance and amazing synchronicity with another writer and survivor wanting to do the same thing, I'm the Co-Founder and Co-Chair of this Testicular Cancer Summit as one of those individual survivors. One of my nearest and dearest roles, however, is as a Director at the Testicular Cancer Awareness Foundation, where I've been a Blogger since 2014. On behalf of TCAF CEO, Kim Jones, I'm excited to share with you the story and mission of the Testicular Cancer Awareness Foundation.Read More
Although the Testicular Cancer Awareness Foundation is based in Grand Junction, CO, we are a nationwide non-profit organization, and #TCAFEast in particular has become a veritable force for testicular cancer awareness in the Mid-Atlantic region. TCAF Board members Dr. Phil Pierorazio, Steve Pake, Jason Greenspan, and several other TCAF volunteers all reside within the MD/VA/DC area, and were able to connect at the Baltimore Orioles game on July 18th for a night of raising awareness.Read More
I had a great time in the Testicular Cancer Awareness Foundation tent at Vans Warped Tour 2017 in Columbia, MD last weekend with fellow survivor and TCAF Board Member, Jason Greenspan. I’ve been doing quite a bit for TCAF over the years, but booth volunteer hasn’t been one of them, so there’s always a first. It was a blast, and I very much enjoyed the mission of educating the predominantly young adult summer concert goers in-person about the disease that has changed my entire life.Read More
I am excited to have the opportunity to be a guest speaker at the Testicular Cancer Summit but more importantly, for the opportunity to meet so many other survivors and caregivers face to face and learn of your experiences. Whether we are a survivor, caregiver or healthcare professional we have each traveled a unique path to where we are today. I look forward to being able to share ways that we can continue to move forward and get back to living life. After our experiences, life may never be the same as it was before we were affected, but I hope that we can all find ways to embrace the “new normal.” I look forward to seeing you all in Denver.Read More
Fantesticle news - Guest speaker at the Testicular Cancer Summit! Being a cancer survivor we all of have story to tell. I like to focus on something “different”. I’m looking forward to share the challenges of a testicular cancer mission in South Africa where besides cancer and its horrible side-effects people have to deal with: no or limited access to clinics and doctors, language barriers, witchcraft, cultural taboos, stigma, rejection, lack of funds, lack of medication and lack of knowledge to name but a few.Read More
Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.Read More
where and how do i begin explaining high dose chemotherapy with (tandem) stem cell transplants? i have been considering how i should go about describing the process, however i wasn’t even sure i understood it correctly.
in my case, and this might be the same for other patients, i am not sure, but upon admittance the clock starts at “day -5” (day negative 5). so, “day 0” is when i get my stem cells back. days -5 — 0 are, as you might have guessed, chemo days.