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Grand Junction, CO 81501

Everything you need to know about testicular cancer; awareness, education, support, treatment, resources, signs & symptoms, testicular self exam, and more. 

Blog

Our blog where we cover many topics about testicular cancer.

Ambassador Bio - Bruce Maximovich

Kim Jones

Growing up, I always heard stories from my mother about an uncle I never met. In the 1970's, testicular cancer was less than curable at an advanced stage and my uncle ultimately succumbed to the monster in 1976. My mother always instilled a fear in me that I need to check myself and speak out if something felt wrong. In 2004, my uncle on my dads side of the family discovered that he also had testicular cancer. He went through 3 rounds of BEP and and RPLND and still deals with minor side effects from the surgery and chemo, today. 

I have always made it a point to check myself. I always felt like it was a ticking time bomb that I would eventually have to disarm. Being 25, I thought I was invincible. I was a college grad with a great career and always thought of life many years down the road. I was so happy planning my life with my soon to be fiancé and looking into getting our first home. March 15th, 2017 is when that all changed. I hadn't checked myself in a few months and decided I should. The very second that I felt it, my heart sank. I knew exactly what I was feeling.

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Ambassador Bio - Toni Brown

Kim Jones

This is the incredible story of Toni Brown and her son, Alexander, and his year long fight against testicular cancer starting in January 2014. Alex was a student in his final year of Geology at the University of British Columbia (UBC) in Vancouver, Canada, when he collapsed in one of his classes after having strange flu-like symptoms for a few days, only for it to be realized that he actually had advanced stage testicular cancer! What's a mother to do other than drop everything at their home near Ottawa at the opposite end of the country, and race to her son's side?  "I packed for two weeks and left home the following day. Little did I know that I’d be gone for 346 days."

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Testicular Cancer Awareness Foundation at Rugged Maniac

Kim Jones

On Saturday, August 5th, the Testicular Cancer Awareness Foundation was at Rugged Maniac in Mohnton, Pennsylvania for the day to raise awareness about Testicular Cancer. Jason Greenspan from the TCAF East Crew attended this event. Rugged Maniac is a 5K obstacle course which travels to different cities across the country.

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Six Ways to Talk about Testicles

Kim Jones

My last post was all about how talking about cancer can be awkward for those who aren’t experiencing it personally, but talking about testicular health as a survivor can be just as hard. I've also shared about some excuses guys may use to avoid doing a self-exam regularly. The topic of testicles can be considered impolite, even if it’s coming from a place of education. One of the primary goals of ABSOT is to get these “private” conversations out in the open, but that’s easier said than done. So to help, a la Barney Stinson’s Playbook from How I Met Your Mother, I’ve crafted various ways to bring up self-checks and testicles into everyday dialogue, based on some real life experiences. 

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Strength Is Freedom

Kim Jones

I was a prisoner of my past.  My prison warden was someone called “I used to”.  “I used to” would remind me of my previous accomplishments lifting humongous weights, running long distances, and various feats of acrobatics.  The warden was quick to steal the joy out of my life and pull the rug out from under me whenever I attempted to regain the strength I was so proud of having before.  I spent many days feeling sorry for myself and lamenting the things I could no longer do until one day I decided I was done with the suffering.

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Living Under the Shadow Of Cancer

Kim Jones

Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.

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Jeremiah Ray - High Dose Chemotherapy Day -5

Kim Jones

where and how do i begin explaining high dose chemotherapy with (tandem) stem cell transplants? i have been considering how i should go about describing the process, however i wasn’t even sure i understood it correctly. 
in my case, and this might be the same for other patients, i am not sure, but upon admittance the clock starts at “day -5” (day negative 5). so, “day 0” is when i get my stem cells back. days -5 — 0 are, as you might have guessed, chemo days.

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Ambassador Bio: Jason Greenspan

Kim Jones

Hi guys! My name is Jason Greenspan and I'll be a five-year Testicular Cancer survivor in November 2017. In May 2012, I was a very healthy 18-year-old and in my senior year of high school. I already applied to colleges and was excited to attend my senior prom. A week before my prom, I was watching television and had a simple itch. That itch ended up being the most important itch of my entire life. I noticed something hard; something I hadn’t noticed before. I went to the doctors a few days later and he said the words I never thought I would hear; “YOU HAVE CANCER.” When the doctor said those words, my world stopped. The only thing I could think of is what my future would be like. I was diagnosed with Stage IIA Testicular Cancer.  

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Jeremiah Ray - Harvesting II (cell counts)

Kim Jones

not the best quality images, but this shows the rapid increase of white blood cells that occurs post nadir (lowest point that an individual’s blood cell count reaches after chemo) coupled with growth factor injections. it is also clear, looking at the counts, why i was suffering from a neutropenic fever and spent a few days in the hospital hooked up tp IV antibiotics and fluids. 

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Infertility After Testicular Cancer

Kim Jones

It has been a year since my first blog for TCAF, and I finally feel ready to openly talk about why it took so long to write this. This time last year was extremely hard for me. Four months out from Nate’s RPLND, life had slowly begun returning back to normal and the realities of what that meant were hitting hard. Not only were we recovering from everything we had been through during our cancer journey, but we were suddenly facing a new challenge... infertility.

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Ambassador Bio: Chris Osborn

Kim Jones

Hello! I’m Chris Osborn a two-time late stage testicular cancer survivor, I’ve been through 4xEP, 1xBEP, 1xVIP, and 2xHDC with stem cell transplant, and RPLND. I am also a type 1 diabetic. I joined TCAF Ambassadors to help others going through testicular cancer, I have some unique medical conditions and I hope I can pass the knowledge I have acquired over the past few years to anyone who needs it! Here is a brief history of my experience with testicular cancer.

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TCAF at Country Jam 2017

Kim Jones

Country Jam 2017 is a wrap, and TCAF was there. Country Jam is an annual 4 day country music festival near Grand Junction, CO, which this year featured Kenny Chesney, Jason Aldean, Thomas Rhett, Justin Moore, Randy Houser, and so many other great artists! We'll let the pictures do the talking! Thanks to all of the wonderful TCAF volunteers and friends that came out, and for helping to make this event a success!

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Jeremiah Ray - Harvesting

Kim Jones

After being in the hospital for 5 days, my oncologist was worried that if i didn’t make it Thursday to collect and thus left only Friday, we were taking a massive gamble as most people need at least two days to collect all the stem cells they will need for a transplant. if i were to wait until Friday and NOT gather all the cells, we’d have to finish up on Monday and just hope the injections were still assisting in generating the needed stem cells. it’s not only the shots that are assisting in this generation of cells! the whole reason for undergoing the monstrous round of chemo/etoposide was to send the body (after nadir) into white blood cell count overdrive! add daily shots to the mix to assist this and boom – massive (daily, maybe hourly?) jumps in cell counts. 

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Jeremiah Ray - Neutropenic Fever

Kim Jones

after spending the better part of the day yesterday (saturday) confined to my bed and lacking all energy, i decided to take my temperature, again. i had taken it earlier in the day and it was slightly below normal (97.9F). however, in the later afternoon, when i could barely gather myself to make tea, i thought it best to take it again. it was 100.8F and rising. normally, i would pop some tylenol and call it a night. however, considering the monstrous round of chemo undergone barely a week ago, i thought it best to head over to the ER.

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Ambassador Bio: Carl Russell

Kim Jones

Hi, I am Carl Russell.   I am 48 years old and a lifelong resident of the Great State of Texas.   I am a son, brother, spouse and father to my family.  I am a military veteran with 8 years active duty in the U.S. Army, of which 9 months was spent in Southwest Asia to support Operation Desert Shield, Storm and Provide Comfort.  I have lived a great life, but nothing prepared me for the day I was diagnosed with Testicular Cancer.

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