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202 North Avenue #305
Grand Junction, CO 81501

Everything you need to know about testicular cancer; awareness, education, support, treatment, resources, signs & symptoms, testicular self exam, and more. 

Blog

Our blog where we cover many topics about testicular cancer.

Living Under the Shadow Of Cancer

Kim Jones

Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.

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Ambassador Bio: Steve Pake, Director

Kim Jones

I was nearly two years out from my cancer diagnosis in late-2012, and thought I had been doing great after cancer. My diagnosis of Stage IIB non-seminoma testicular cancer at the beginning of 2011 at the age of 33 came as a shock to everyone in my family, but I powered my way through EPx4 chemotherapy and an RPLND surgery at Sloan-Kettering in New York City, and was back to life, back to reality, had started a new job immediately afterwards, and it had all almost seemed too easy. The reality was that I still had no idea what I had even been through, and unbeknownst to me, I had simply shut off my emotions for the preceding two years in order to get through all that I had, while keeping a brave face on for my family.

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Ambassador Bio: Jason Greenspan

Kim Jones

Hi guys! My name is Jason Greenspan and I'll be a five-year Testicular Cancer survivor in November 2017. In May 2012, I was a very healthy 18-year-old and in my senior year of high school. I already applied to colleges and was excited to attend my senior prom. A week before my prom, I was watching television and had a simple itch. That itch ended up being the most important itch of my entire life. I noticed something hard; something I hadn’t noticed before. I went to the doctors a few days later and he said the words I never thought I would hear; “YOU HAVE CANCER.” When the doctor said those words, my world stopped. The only thing I could think of is what my future would be like. I was diagnosed with Stage IIA Testicular Cancer.  

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The Top 5 Things You Need To Know About The Testicular Cancer Summit in Denver

Kim Jones

It’s coming this Fall 2017! Mark your calendars for October 13-15th in Denver, Colorado for a first of its kind Testicular Cancer Summit, featuring Dr. Lawrence Einhorn as an honorary guest speaker! If you’ve been wondering what’s going on and what this is all about, here are the Top 5 things you need to know about the Testicular Cancer Summit in Denver this October.

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Infertility After Testicular Cancer

Kim Jones

It has been a year since my first blog for TCAF, and I finally feel ready to openly talk about why it took so long to write this. This time last year was extremely hard for me. Four months out from Nate’s RPLND, life had slowly begun returning back to normal and the realities of what that meant were hitting hard. Not only were we recovering from everything we had been through during our cancer journey, but we were suddenly facing a new challenge... infertility.

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Ambassador Bio: Chris Osborn

Kim Jones

Hello! I’m Chris Osborn a two-time late stage testicular cancer survivor, I’ve been through 4xEP, 1xBEP, 1xVIP, and 2xHDC with stem cell transplant, and RPLND. I am also a type 1 diabetic. I joined TCAF Ambassadors to help others going through testicular cancer, I have some unique medical conditions and I hope I can pass the knowledge I have acquired over the past few years to anyone who needs it! Here is a brief history of my experience with testicular cancer.

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TCAF at Country Jam 2017

Kim Jones

Country Jam 2017 is a wrap, and TCAF was there. Country Jam is an annual 4 day country music festival near Grand Junction, CO, which this year featured Kenny Chesney, Jason Aldean, Thomas Rhett, Justin Moore, Randy Houser, and so many other great artists! We'll let the pictures do the talking! Thanks to all of the wonderful TCAF volunteers and friends that came out, and for helping to make this event a success!

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Jeremiah Ray - Harvesting

Kim Jones

After being in the hospital for 5 days, my oncologist was worried that if i didn’t make it Thursday to collect and thus left only Friday, we were taking a massive gamble as most people need at least two days to collect all the stem cells they will need for a transplant. if i were to wait until Friday and NOT gather all the cells, we’d have to finish up on Monday and just hope the injections were still assisting in generating the needed stem cells. it’s not only the shots that are assisting in this generation of cells! the whole reason for undergoing the monstrous round of chemo/etoposide was to send the body (after nadir) into white blood cell count overdrive! add daily shots to the mix to assist this and boom – massive (daily, maybe hourly?) jumps in cell counts. 

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Jeremiah Ray - Neutropenic Fever

Kim Jones

after spending the better part of the day yesterday (saturday) confined to my bed and lacking all energy, i decided to take my temperature, again. i had taken it earlier in the day and it was slightly below normal (97.9F). however, in the later afternoon, when i could barely gather myself to make tea, i thought it best to take it again. it was 100.8F and rising. normally, i would pop some tylenol and call it a night. however, considering the monstrous round of chemo undergone barely a week ago, i thought it best to head over to the ER.

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Remembering Jordan Jones One Year Later

Kim Jones

A year ago today. :( Never in a million years when I joined the Testicular Cancer Awareness Foundation back in 2014 as a blogger at first, did I ever think that this young man Jordan Jones, the son of TCAF's founder, Kim Jones, would eventually lose his life like this to a late recurrence of the disease after so long. It's just something that's been burned into me now, how precious life really is, and how uncertain everything is. Never waste a day or a moment, and make each one count for something. We're only here for a very short time.

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Cancer Survivorship at Six Years

Kim Jones

Six years after my cancer fight, I still GRIEVE the loss of my life as I once knew it sometimes, thinking that everything would always be okay, that my family would always be healthy, and friends that I truly love and care about will always be around. I want to believe that, but know it's just now how things work. Why do I get so sappy and emotional? Because I love you, and I want you to know that now, today, because I know that you might not be around tomorrow, or maybe I'm the one that might not be around.

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Ambassador Bio: Carl Russell

Kim Jones

Hi, I am Carl Russell.   I am 48 years old and a lifelong resident of the Great State of Texas.   I am a son, brother, spouse and father to my family.  I am a military veteran with 8 years active duty in the U.S. Army, of which 9 months was spent in Southwest Asia to support Operation Desert Shield, Storm and Provide Comfort.  I have lived a great life, but nothing prepared me for the day I was diagnosed with Testicular Cancer.

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What To Expect When You're Expecting Chemo

Kim Jones

One of the most popular books for pregnant women is What to Expect When You’re Expecting. This book details the physical, mental, and emotional changes they’ll undergo as they travel through their journey and get that happy news - it’s a healthy boy/girl.

As I began chemo in November 2016, I realized a male-centric version, entitled What to Expect When You’re Expecting Chemo (Because Your Testicle Decided to Go Rogue and Try to Kill You) would have been a helpful title in my library. Unfortunately, this volume has yet to be written (which I’m going to chalk up to the obnoxiously long title). It looks like it’s up to me. I’ll be penning the first draft here, based on my experience of three rounds of BEP chemo.

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John Taylor - Cancer, College, and Continuation

Kim Jones

It was in the fall of 2012 that my life that cancer would turn my life upside down. At the age of 29, with two kids just five and three at the time, I would come face to face with my mortality, fight for my life, and watch the world around me evolve at a time when my life was at a standstill. 5 years later, I am a college graduate, and on to another new journey in life.

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Ambassador Bio: Josh Cooper

Kim Jones

"Hey guys!  My name is Josh Cooper, I am a stage 2a Pure Seminoma Testicular cancer survivor.  I was diagnosed in October of 2012, originally stage 1b.  At the time, I was a healthy and happy 24 year old, and thought nothing could go wrong.  One day, I noticed my left testicle just felt off.  It felt hard, but I didn't find a lump.  As the days went on, I searched webmd, and started to worry.  With no health insurance, I went to my local urgent care.  They originally thought it was an infection, but a few weeks later we did an ultrasound.  That day, I got the call the changed my life.  I remember sitting in my car, my world crashing around me, when I heard the words "Mr. Cooper, there is a very good chance that you have testicular cancer."  

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Ambassador Bio: Dan Carroll

Kim Jones

It all started sometime in early 2005, I noticed my right testicle seemed slightly bigger. Of course at 24 I had no clue what that meant and just brushed it off. I kept on going, living my life. Around April, my appetite fell off and by the second week of May not only had I really become worried about the size of my testicle, but it really started to hurt. Even then I had not made an appointment to have it checked, but I did go to my family doctor to check into some issues I was having with swallowing food (which later turned out to also be a side effect of the spreading cancer). Luckily, during an abdominal ultrasound, they saw the spots that would alter my life forever. They immediately rushed me to CT scan and within 24 hours I received a call from my doctor that he was referring me to an oncologist.

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Jeremiah Ray - pherisis line & etoposide

Kim Jones

on 5/27/17 i went inpatient for my etoposide infusion. as mentioned this is done just prior to daily injections (which i start today) of stem cell growth factors. the idea in such an intense chemo dosage (explained below) is to really try to beat down the “bad” stem cells before forcing the generation of new, healthy ones. these newer stem cells are then collected and then the aforementioned process takes place again but with even more intense chemo over longer periods of time. so, rather than just “beating” them down, they’re being annihilated completely.

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