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Grand Junction, CO 81501

Everything you need to know about testicular cancer; awareness, education, support, treatment, resources, signs & symptoms, testicular self exam, and more. 

Blog

Our blog where we cover many topics about testicular cancer.

Testicular Cancer Summit Keynote Speaker - Dr Phillip M. Pierorazio, M.D.

Kim Jones

I am an urologist at Johns Hopkins in Baltimore, Maryland and a passionate advocate for our testicular cancer patients.  I am a member of the National Comprehensive Cancer Network Guidelines Committee for Testicular Cancer and considered among the experts in robotic and open retroperitoneal lymph node dissection.  There is no cancer like testicular cancer, it affects young men and because of the high cure rate, can have lasting effects for decades after successful treatment.  For those reasons and more, there is no patient population like testicular cancer survivors – and there is no more rewarding group for whom to care. 

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Testicular Cancer Summit Guest Speaker - Jason Greenspan

Kim Jones

Jason is looking forward to the Testicular Cancer Summit because it is a great way for all members of the Testicular Cancer community to come together and interact. He will be able to share his story with others, but also learn from other Testicular Cancer survivors as well! There will be survivors from all over the world and many Testicular Cancer foundations, as well as world renowned doctors who specialize in the treatment of Testicular Cancer. With all these elements and this being the first event of its kind anywhere in the world, the event is sure to be a major success! Jason will be speaking about his cancer journey as a student in high school and the impact it had on his life. He will also be discussing what young men can do to be more active about Testicular Cancer awareness in their own communities.

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Testicular Cancer Summit Guest Speaker - Nancy Balin

Kim Jones

 The Jaimeson Jones Memorial Scholarship has two missions:  Providing scholarships to families who have experienced childhood cancer, and preaching early detection of TC by teaching its signs and symptoms. JJMS is dedicated to changing the culture of silence about men’s health and heightening people’s awareness about testicular cancer, and to do that, we get them where they live:  with humor. We are beyond honored and thrilled to be attending the first-ever Testicular Cancer Summit.

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Testicular Cancer Summit Guest Speaker - Steve Pake

Kim Jones

I'm a fighter, and a survivor, just like all of you. I've become a recognized writer on the topic of young adult cancer, with blogs that have reached hundred of thousands if not millions across the world on multiple platforms. By pure chance and amazing synchronicity with another writer and survivor wanting to do the same thing, I'm the Co-Founder and Co-Chair of this Testicular Cancer Summit as one of those individual survivors. One of my nearest and dearest roles, however, is as a Director at the Testicular Cancer Awareness Foundation, where I've been a Blogger since 2014. On behalf of TCAF CEO, Kim Jones, I'm excited to share with you the story and mission of the Testicular Cancer Awareness Foundation. 

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TCAF at the Baltimore Orioles Community Booth

Kim Jones

Although the Testicular Cancer Awareness Foundation is based in Grand Junction, CO, we are a nationwide non-profit organization, and #TCAFEast in particular has become a veritable force for testicular cancer awareness in the Mid-Atlantic region. TCAF Board members Dr. Phil Pierorazio, Steve Pake, Jason Greenspan, and several other TCAF volunteers all reside within the MD/VA/DC area, and were able to connect at the Baltimore Orioles game on July 18th for a night of raising awareness.

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Volunteering at Vans Warped Tour 2017

Kim Jones

I had a great time in the Testicular Cancer Awareness Foundation tent at Vans Warped Tour 2017 in Columbia, MD last weekend with fellow survivor and TCAF Board Member, Jason Greenspan. I’ve been doing quite a bit for TCAF over the years, but booth volunteer hasn’t been one of them, so there’s always a first. It was a blast, and I very much enjoyed the mission of educating the predominantly young adult summer concert goers in-person about the disease that has changed my entire life.

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Testicular Cancer Summit Guest Speaker - Mike Craycraft

Kim Jones

I am excited to have the opportunity to be a guest speaker at the Testicular Cancer Summit but more importantly, for the opportunity to meet so many other survivors and caregivers face to face and learn of your experiences. Whether we are a survivor, caregiver or healthcare professional we have each traveled a unique path to where we are today. I look forward to being able to share ways that we can continue to move forward and get back to living life. After our experiences, life may never be the same as it was before we were affected, but I hope that we can all find ways to embrace the “new normal.” I look forward to seeing you all in Denver.

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Testicular Cancer Summit Guest Speaker - Torsten Koehler

Kim Jones

Fantesticle news - Guest speaker at the Testicular Cancer Summit! Being a cancer survivor we all of have story to tell. I like to focus on something “different”. I’m looking forward to share the challenges of a testicular cancer mission in South Africa where besides cancer and its horrible side-effects people have to deal with: no or limited access to clinics and doctors, language barriers, witchcraft, cultural taboos, stigma, rejection, lack of funds, lack of medication and lack of knowledge to name but a few.

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Living Under the Shadow Of Cancer

Kim Jones

Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.

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Jeremiah Ray - High Dose Chemotherapy Day -5

Kim Jones

where and how do i begin explaining high dose chemotherapy with (tandem) stem cell transplants? i have been considering how i should go about describing the process, however i wasn’t even sure i understood it correctly. 
in my case, and this might be the same for other patients, i am not sure, but upon admittance the clock starts at “day -5” (day negative 5). so, “day 0” is when i get my stem cells back. days -5 — 0 are, as you might have guessed, chemo days.

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Ambassador Bio: Steve Pake, Director

Kim Jones

I was nearly two years out from my cancer diagnosis in late-2012, and thought I had been doing great after cancer. My diagnosis of Stage IIB non-seminoma testicular cancer at the beginning of 2011 at the age of 33 came as a shock to everyone in my family, but I powered my way through EPx4 chemotherapy and an RPLND surgery at Sloan-Kettering in New York City, and was back to life, back to reality, had started a new job immediately afterwards, and it had all almost seemed too easy. The reality was that I still had no idea what I had even been through, and unbeknownst to me, I had simply shut off my emotions for the preceding two years in order to get through all that I had, while keeping a brave face on for my family.

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Ambassador Bio: Jason Greenspan

Kim Jones

Hi guys! My name is Jason Greenspan and I'll be a five-year Testicular Cancer survivor in November 2017. In May 2012, I was a very healthy 18-year-old and in my senior year of high school. I already applied to colleges and was excited to attend my senior prom. A week before my prom, I was watching television and had a simple itch. That itch ended up being the most important itch of my entire life. I noticed something hard; something I hadn’t noticed before. I went to the doctors a few days later and he said the words I never thought I would hear; “YOU HAVE CANCER.” When the doctor said those words, my world stopped. The only thing I could think of is what my future would be like. I was diagnosed with Stage IIA Testicular Cancer.  

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Jeremiah Ray - Harvesting II (cell counts)

Kim Jones

not the best quality images, but this shows the rapid increase of white blood cells that occurs post nadir (lowest point that an individual’s blood cell count reaches after chemo) coupled with growth factor injections. it is also clear, looking at the counts, why i was suffering from a neutropenic fever and spent a few days in the hospital hooked up tp IV antibiotics and fluids. 

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The Top 5 Things You Need To Know About The Testicular Cancer Summit in Denver

Kim Jones

It’s coming this Fall 2017! Mark your calendars for October 13-15th in Denver, Colorado for a first of its kind Testicular Cancer Summit, featuring Dr. Lawrence Einhorn as an honorary guest speaker! If you’ve been wondering what’s going on and what this is all about, here are the Top 5 things you need to know about the Testicular Cancer Summit in Denver this October.

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Infertility After Testicular Cancer

Kim Jones

It has been a year since my first blog for TCAF, and I finally feel ready to openly talk about why it took so long to write this. This time last year was extremely hard for me. Four months out from Nate’s RPLND, life had slowly begun returning back to normal and the realities of what that meant were hitting hard. Not only were we recovering from everything we had been through during our cancer journey, but we were suddenly facing a new challenge... infertility.

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Ambassador Bio: Chris Osborn

Kim Jones

Hello! I’m Chris Osborn a two-time late stage testicular cancer survivor, I’ve been through 4xEP, 1xBEP, 1xVIP, and 2xHDC with stem cell transplant, and RPLND. I am also a type 1 diabetic. I joined TCAF Ambassadors to help others going through testicular cancer, I have some unique medical conditions and I hope I can pass the knowledge I have acquired over the past few years to anyone who needs it! Here is a brief history of my experience with testicular cancer.

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TCAF at Country Jam 2017

Kim Jones

Country Jam 2017 is a wrap, and TCAF was there. Country Jam is an annual 4 day country music festival near Grand Junction, CO, which this year featured Kenny Chesney, Jason Aldean, Thomas Rhett, Justin Moore, Randy Houser, and so many other great artists! We'll let the pictures do the talking! Thanks to all of the wonderful TCAF volunteers and friends that came out, and for helping to make this event a success!

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Jeremiah Ray - Harvesting

Kim Jones

After being in the hospital for 5 days, my oncologist was worried that if i didn’t make it Thursday to collect and thus left only Friday, we were taking a massive gamble as most people need at least two days to collect all the stem cells they will need for a transplant. if i were to wait until Friday and NOT gather all the cells, we’d have to finish up on Monday and just hope the injections were still assisting in generating the needed stem cells. it’s not only the shots that are assisting in this generation of cells! the whole reason for undergoing the monstrous round of chemo/etoposide was to send the body (after nadir) into white blood cell count overdrive! add daily shots to the mix to assist this and boom – massive (daily, maybe hourly?) jumps in cell counts. 

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Jeremiah Ray - Neutropenic Fever

Kim Jones

after spending the better part of the day yesterday (saturday) confined to my bed and lacking all energy, i decided to take my temperature, again. i had taken it earlier in the day and it was slightly below normal (97.9F). however, in the later afternoon, when i could barely gather myself to make tea, i thought it best to take it again. it was 100.8F and rising. normally, i would pop some tylenol and call it a night. however, considering the monstrous round of chemo undergone barely a week ago, i thought it best to head over to the ER.

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