Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.Read More
where and how do i begin explaining high dose chemotherapy with (tandem) stem cell transplants? i have been considering how i should go about describing the process, however i wasn’t even sure i understood it correctly.
in my case, and this might be the same for other patients, i am not sure, but upon admittance the clock starts at “day -5” (day negative 5). so, “day 0” is when i get my stem cells back. days -5 — 0 are, as you might have guessed, chemo days.
on thursday, june 15 i underwent the last pre-transplant tests (aka transplant work-up). it was a very long day of running from one appointment to another, and anyone who knows mass general knows the distance one can cover going from one part of the campus to another. a large part of this exhaustion, though certainly physical, was also emotionalRead More
Hi guys! My name is Jason Greenspan and I'll be a five-year Testicular Cancer survivor in November 2017. In May 2012, I was a very healthy 18-year-old and in my senior year of high school. I already applied to colleges and was excited to attend my senior prom. A week before my prom, I was watching television and had a simple itch. That itch ended up being the most important itch of my entire life. I noticed something hard; something I hadn’t noticed before. I went to the doctors a few days later and he said the words I never thought I would hear; “YOU HAVE CANCER.” When the doctor said those words, my world stopped. The only thing I could think of is what my future would be like. I was diagnosed with Stage IIA Testicular Cancer.Read More
not the best quality images, but this shows the rapid increase of white blood cells that occurs post nadir (lowest point that an individual’s blood cell count reaches after chemo) coupled with growth factor injections. it is also clear, looking at the counts, why i was suffering from a neutropenic fever and spent a few days in the hospital hooked up tp IV antibiotics and fluids.Read More
It has been a year since my first blog for TCAF, and I finally feel ready to openly talk about why it took so long to write this. This time last year was extremely hard for me. Four months out from Nate’s RPLND, life had slowly begun returning back to normal and the realities of what that meant were hitting hard. Not only were we recovering from everything we had been through during our cancer journey, but we were suddenly facing a new challenge... infertility.Read More
Hello! I’m Chris Osborn a two-time late stage testicular cancer survivor, I’ve been through 4xEP, 1xBEP, 1xVIP, and 2xHDC with stem cell transplant, and RPLND. I am also a type 1 diabetic. I joined TCAF Ambassadors to help others going through testicular cancer, I have some unique medical conditions and I hope I can pass the knowledge I have acquired over the past few years to anyone who needs it! Here is a brief history of my experience with testicular cancer.Read More
Country Jam 2017 is a wrap, and TCAF was there. Country Jam is an annual 4 day country music festival near Grand Junction, CO, which this year featured Kenny Chesney, Jason Aldean, Thomas Rhett, Justin Moore, Randy Houser, and so many other great artists! We'll let the pictures do the talking! Thanks to all of the wonderful TCAF volunteers and friends that came out, and for helping to make this event a success!Read More
After being in the hospital for 5 days, my oncologist was worried that if i didn’t make it Thursday to collect and thus left only Friday, we were taking a massive gamble as most people need at least two days to collect all the stem cells they will need for a transplant. if i were to wait until Friday and NOT gather all the cells, we’d have to finish up on Monday and just hope the injections were still assisting in generating the needed stem cells. it’s not only the shots that are assisting in this generation of cells! the whole reason for undergoing the monstrous round of chemo/etoposide was to send the body (after nadir) into white blood cell count overdrive! add daily shots to the mix to assist this and boom – massive (daily, maybe hourly?) jumps in cell counts.Read More
after spending the better part of the day yesterday (saturday) confined to my bed and lacking all energy, i decided to take my temperature, again. i had taken it earlier in the day and it was slightly below normal (97.9F). however, in the later afternoon, when i could barely gather myself to make tea, i thought it best to take it again. it was 100.8F and rising. normally, i would pop some tylenol and call it a night. however, considering the monstrous round of chemo undergone barely a week ago, i thought it best to head over to the ER.Read More
In November of 2016, myself and a representative with the Emerald Coast Beard and Mustache Alliance (ECBMA) put on a few events to raise money for Testicular Cancer Awareness Foundation, and the "Go Nuts for No Shave November" campaign.Read More
It was a beautiful and emotional day for the Jordan Jones Memorial Golf Tournament back on May 20th, 2017, at the at Adobe Creek National Golf Course. It was the 7th annual golf tournament benefiting the Testicular Cancer Awareness Foundation.Read More
Hi, I am Carl Russell. I am 48 years old and a lifelong resident of the Great State of Texas. I am a son, brother, spouse and father to my family. I am a military veteran with 8 years active duty in the U.S. Army, of which 9 months was spent in Southwest Asia to support Operation Desert Shield, Storm and Provide Comfort. I have lived a great life, but nothing prepared me for the day I was diagnosed with Testicular Cancer.Read More
One of the most popular books for pregnant women is What to Expect When You’re Expecting. This book details the physical, mental, and emotional changes they’ll undergo as they travel through their journey and get that happy news - it’s a healthy boy/girl.
As I began chemo in November 2016, I realized a male-centric version, entitled What to Expect When You’re Expecting Chemo (Because Your Testicle Decided to Go Rogue and Try to Kill You) would have been a helpful title in my library. Unfortunately, this volume has yet to be written (which I’m going to chalk up to the obnoxiously long title). It looks like it’s up to me. I’ll be penning the first draft here, based on my experience of three rounds of BEP chemo.Read More
It was in the fall of 2012 that my life that cancer would turn my life upside down. At the age of 29, with two kids just five and three at the time, I would come face to face with my mortality, fight for my life, and watch the world around me evolve at a time when my life was at a standstill. 5 years later, I am a college graduate, and on to another new journey in life.Read More
"Hey guys! My name is Josh Cooper, I am a stage 2a Pure Seminoma Testicular cancer survivor. I was diagnosed in October of 2012, originally stage 1b. At the time, I was a healthy and happy 24 year old, and thought nothing could go wrong. One day, I noticed my left testicle just felt off. It felt hard, but I didn't find a lump. As the days went on, I searched webmd, and started to worry. With no health insurance, I went to my local urgent care. They originally thought it was an infection, but a few weeks later we did an ultrasound. That day, I got the call the changed my life. I remember sitting in my car, my world crashing around me, when I heard the words "Mr. Cooper, there is a very good chance that you have testicular cancer."Read More
on 5/27/17 i went inpatient for my etoposide infusion. as mentioned this is done just prior to daily injections (which i start today) of stem cell growth factors. the idea in such an intense chemo dosage (explained below) is to really try to beat down the “bad” stem cells before forcing the generation of new, healthy ones. these newer stem cells are then collected and then the aforementioned process takes place again but with even more intense chemo over longer periods of time. so, rather than just “beating” them down, they’re being annihilated completely.Read More
i am endlessly impressed by the body’s ability to heal and recover. the trick to recovery is patience and acceptance of what is, where one is at etc. the body knows what it needs to heal, as does the heart and mind.Read More
Nothing matters more to all of us at the Testicular Cancer Awareness Foundation than getting out into the public, and helping to raise awareness about testicular cancer. It's the number one form of cancer in men ages 15-44, yet almost no one talks about the disease! The rate of testicular cancer in young men is nearly the same as the rate of breast cancer in young women, yet all you ever see are pink ribbons and breast cancer awareness campaigns. There's nothing wrong with that, but we need to be talking about men's cancers and testicular cancer, too! We need to see more BLUE out there, and so it was great to see so much awareness activity this past week by TCAF Ambassadors in both schools and at health fairs.Read More
When I was finishing chemo, I was given Ambien to help me sleep. It didn't work, but the side effects of 'violent and suicidal thoughts' sure did.I don't think I've ever really talked about this publicly, but reading about Chris Cornell's death and what his wife is saying about his taking Ativan, which is some powerful stuff made me see the connection.Read More