Growing up, I always heard stories from my mother about an uncle I never met. In the 1970's, testicular cancer was less than curable at an advanced stage and my uncle ultimately succumbed to the monster in 1976. My mother always instilled a fear in me that I need to check myself and speak out if something felt wrong...Read More
My husband at 36 had no medical problems, in fact he often refused to go in for even a regular check up. I feel many men do the same, thinking they will "get better" on their own. I am a RN with 9 years nursing experience and did not drag him in until he was hobbled over like a 90 year old man.Read More
This is the incredible story of Toni Brown and her son, Alexander, and his year long fight against testicular cancer starting in January 2014. Alex was a student in his final year of Geology at the University of British Columbia (UBC) in Vancouver, Canada, when he collapsed in one of his classes after having strange flu-like symptoms for a few days...Read More
On Saturday, August 5th, the Testicular Cancer Awareness Foundation was at Rugged Maniac in Mohnton, Pennsylvania for the day to raise awareness about Testicular Cancer. Jason Greenspan from the TCAF East Crew attended this event. Rugged Maniac is a 5K obstacle course which travels to different cities across the country.Read More
I was a prisoner of my past. My prison warden was someone called “I used to”. “I used to” would remind me of my previous accomplishments lifting humongous weights, running long distances, and various feats of acrobatics. The warden was quick to steal the joy out of my life and pull the rug out from under me whenever I attempted to regain the strength I was so proud of having before. I spent many days feeling sorry for myself and lamenting the things I could no longer do until one day I decided I was done with the suffering.Read More
We all went through different experiences on our paths to being survivors. But we are all linked through one common thought. The memory remains.Read More
Cancer. The bastard disease of humankind that kills without hesitation, without prejudice. It is one of the most dreaded words in the medical world, especially if you are a patient. Cancer will turn a world upside down, backwards, and inside out. And more than likely, cancer will be what kills me in the end. That’s a depressing thought to have I know. It’s one of those things that is just ingrained in my mind, and something that contributes to daily anxiety. Let me break it down for you.Read More
where and how do i begin explaining high dose chemotherapy with (tandem) stem cell transplants? i have been considering how i should go about describing the process, however i wasn’t even sure i understood it correctly.
in my case, and this might be the same for other patients, i am not sure, but upon admittance the clock starts at “day -5” (day negative 5). so, “day 0” is when i get my stem cells back. days -5 — 0 are, as you might have guessed, chemo days.
on thursday, june 15 i underwent the last pre-transplant tests (aka transplant work-up). it was a very long day of running from one appointment to another, and anyone who knows mass general knows the distance one can cover going from one part of the campus to another. a large part of this exhaustion, though certainly physical, was also emotionalRead More
Hi guys! My name is Jason Greenspan and I'll be a five-year Testicular Cancer survivor in November 2017. In May 2012, I was a very healthy 18-year-old and in my senior year of high school. I already applied to colleges and was excited to attend my senior prom. A week before my prom, I was watching television and had a simple itch. That itch ended up being the most important itch of my entire life. I noticed something hard; something I hadn’t noticed before. I went to the doctors a few days later and he said the words I never thought I would hear; “YOU HAVE CANCER.” When the doctor said those words, my world stopped. The only thing I could think of is what my future would be like. I was diagnosed with Stage IIA Testicular Cancer.Read More
not the best quality images, but this shows the rapid increase of white blood cells that occurs post nadir (lowest point that an individual’s blood cell count reaches after chemo) coupled with growth factor injections. it is also clear, looking at the counts, why i was suffering from a neutropenic fever and spent a few days in the hospital hooked up tp IV antibiotics and fluids.Read More
It has been a year since my first blog for TCAF, and I finally feel ready to openly talk about why it took so long to write this. This time last year was extremely hard for me. Four months out from Nate’s RPLND, life had slowly begun returning back to normal and the realities of what that meant were hitting hard. Not only were we recovering from everything we had been through during our cancer journey, but we were suddenly facing a new challenge... infertility.Read More
Hello! I’m Chris Osborn a two-time late stage testicular cancer survivor, I’ve been through 4xEP, 1xBEP, 1xVIP, and 2xHDC with stem cell transplant, and RPLND. I am also a type 1 diabetic. I joined TCAF Ambassadors to help others going through testicular cancer, I have some unique medical conditions and I hope I can pass the knowledge I have acquired over the past few years to anyone who needs it! Here is a brief history of my experience with testicular cancer.Read More
After being in the hospital for 5 days, my oncologist was worried that if i didn’t make it Thursday to collect and thus left only Friday, we were taking a massive gamble as most people need at least two days to collect all the stem cells they will need for a transplant. if i were to wait until Friday and NOT gather all the cells, we’d have to finish up on Monday and just hope the injections were still assisting in generating the needed stem cells. it’s not only the shots that are assisting in this generation of cells! the whole reason for undergoing the monstrous round of chemo/etoposide was to send the body (after nadir) into white blood cell count overdrive! add daily shots to the mix to assist this and boom – massive (daily, maybe hourly?) jumps in cell counts.Read More
after spending the better part of the day yesterday (saturday) confined to my bed and lacking all energy, i decided to take my temperature, again. i had taken it earlier in the day and it was slightly below normal (97.9F). however, in the later afternoon, when i could barely gather myself to make tea, i thought it best to take it again. it was 100.8F and rising. normally, i would pop some tylenol and call it a night. however, considering the monstrous round of chemo undergone barely a week ago, i thought it best to head over to the ER.Read More
In November of 2016, myself and a representative with the Emerald Coast Beard and Mustache Alliance (ECBMA) put on a few events to raise money for Testicular Cancer Awareness Foundation, and the "Go Nuts for No Shave November" campaign.Read More
Hi, I am Carl Russell. I am 48 years old and a lifelong resident of the Great State of Texas. I am a son, brother, spouse and father to my family. I am a military veteran with 8 years active duty in the U.S. Army, of which 9 months was spent in Southwest Asia to support Operation Desert Shield, Storm and Provide Comfort. I have lived a great life, but nothing prepared me for the day I was diagnosed with Testicular Cancer.Read More
One of the most popular books for pregnant women is What to Expect When You’re Expecting. This book details the physical, mental, and emotional changes they’ll undergo as they travel through their journey and get that happy news - it’s a healthy boy/girl.
As I began chemo in November 2016, I realized a male-centric version, entitled What to Expect When You’re Expecting Chemo (Because Your Testicle Decided to Go Rogue and Try to Kill You) would have been a helpful title in my library. Unfortunately, this volume has yet to be written (which I’m going to chalk up to the obnoxiously long title). It looks like it’s up to me. I’ll be penning the first draft here, based on my experience of three rounds of BEP chemo.Read More
It was in the fall of 2012 that my life that cancer would turn my life upside down. At the age of 29, with two kids just five and three at the time, I would come face to face with my mortality, fight for my life, and watch the world around me evolve at a time when my life was at a standstill. 5 years later, I am a college graduate, and on to another new journey in life.Read More